When should we choose Palliative Care?

When someone is diagnosed with a serious illness, palliative care can be suggested for a patient to receive. Understanding this type of service and what it all involves and costs can help guide you in the decision making process.

So, what exactly is Palliative Care?

Palliative care is a specialized medical approach aimed at improving the quality of life for individuals facing serious illnesses. Focusing on providing relief from the symptoms, pain, and stress associated with the illness, rather than attempting to cure.

It is holistic in nature, encompassing not only physical care, but also addressing emotional, social, and spiritual needs. This type of care is provided by an interdisciplinary team of healthcare professionals optimize the patient’s comfort and well-being.

Who are the members of the interdisciplinary team?

The palliative care interdisciplinary team is a group of healthcare professionals who work together to provide comprehensive care and support for individuals with serious illnesses and their families.

This team typically includes the following members:

1. Palliative Care Physicians: Doctors specializing in managing pain and other symptoms, providing guidance on treatment options, and care planning.
2. Palliative Care Nurses: Registered nurses that are specialized in palliative care and implement the care plan. They also provide symptom management, and offering emotional support to patients and family members.
3. Social Workers: They provide psychosocial support to patients and their families, helping to address emotional, financial, and practical concerns.
4. Chaplains/Spiritual Care Providers: These individuals offer spiritual and emotional support to patients, respecting their diverse faith and belief systems.
5. Pharmacists: They work closely with the team to ensure proper medication management, including pain management and addressing potential drug interactions.
6. Therapists: Occupational, physical, speech and respiratory therapists may be part of the team to address the patient’s functional needs, mobility, and respiratory support.
7. Psychologists/Psychiatrists: Mental health professionals can provide counseling and support to patients and their families, addressing psychological distress and coping strategies.
8. Palliative Care Volunteers: Trained volunteers can provide companionship, emotional support, and assistance with practical tasks for patients and families.
9. Patient: The person that is being cared for, and is benefiting from this service, should not be overlooked.
10. Family/POA: If the patient is no longer able to communicate, family or POA (Power of Attorney) should be involved.

By working collaboratively, the team aims to address the physical, emotional, social, and spiritual needs of patients. In turn, promoting their overall well-being and quality of life.

Choosing palliative care can greatly depend on an individual’s specific needs and circumstances.

Here are some common situations of consideration for these services:

1. Serious Illness: A diagnosis of a serious or life-limiting illness such as cancer, heart disease, advanced dementia, or end-stage organ failure.
2. Symptom Management: It is beneficial when individuals are experiencing significant physical symptoms, such as pain, nausea, shortness of breath, or fatigue, that require expert management and relief.
3. Complex Care Needs: Can be helpful when someone requires complex medical management due to their condition or multiple health issues.
4. Emotional and Psychological Support: Palliative care offers emotional and psychological support to individuals and their families, helping them cope with the challenges, fears, and anxieties that can arise during serious illness.
5. End-of-Life Care: It is especially important when someone is in the final stages of their life, offering comfort, dignity, and support to patients and their loved ones.

It’s crucial to consult with healthcare professionals and specialists who can assess your specific situation. They can provide personalized advice regarding the appropriateness and benefits of palliative care.

What are the costs and who pays for the services?

The costs of palliative care can vary depending on various factors such as the level of care needed, the location, and the specific services provided.

In many countries, these services are covered by national health insurance or public healthcare systems. Meaning the costs may be covered, at least partially, by the government or insurance providers. However, the extent of coverage and reimbursement policies may vary.

Additionally, some palliative care services may be offered by charitable organizations (including the VA) or hospices. These organizations often rely on donations, fundraising, and grants to cover the expenses associated with providing care to patients.

It’s worth noting that there may still be some out-of-pocket expenses for patients such as copayments, deductibles, or services that are not covered by insurance. It’s important for individuals and their families to consult with healthcare professionals and insurance providers to understand the specific costs and coverage options available to them in their particular situation.

How do I find organizations that specialize in these services?

Here are some suggested resources:

1. Online Research: Start by conducting a search on reputable search engines using keywords such as “Palliative Care organizations”. This will provide you with a list of national and international organizations dedicated to this specific service.
2. Healthcare Directories: Check local healthcare directories or hospital websites in your area. They often provide information about organizations that offer Palliative care services.
3. Medical Associations and Societies: Look for medical associations and societies related to Palliative care. They usually have a list of affiliated organizations that specialize in this field. (National Hospice and Palliative Care Organization)
4. Referrals: Speak with your primary healthcare provider, local hospitals, or support groups that focus on chronic illness or end-of-life care. They can provide valuable insights and recommendations regarding organizations in your area.
5. Local Community Resources: Contact local community resources such as senior centers, community centers, or religious organizations. These institutions often have connections with providers and can offer guidance in finding suitable organizations.
6. Caregiver Consultant: Generational Support and other consulting companies and care managers in the aging industry can provide information on Palliative Care organizations.

Remember to evaluate these organizations based on factors such as reputation, accreditation, services provided, and patient reviews to ensure you choose the most appropriate option for your needs.

In conclusion, the goal of palliative care is to enhance the patient’s overall quality of life and support both the patient and their loved ones throughout the illness journey.